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Patient Advocacy & Resources

Connect with your community

If you or a family member is facing the challenges of a serious medical condition, you don’t have to face it alone. Patient communities can help connect you with important resources—and other people like you. Some organizations perform extensive outreach, interact with government and industry partners, and even fund groundbreaking research.

Below are organizations that support and connect patients across different therapeutic needs. Learn how you can get involved by visiting their websites.

These organizations may provide helpful information and resources to individuals looking to learn more. Their inclusion on this page does not indicate any endorsement of Insmed, our programs, or our products.

Jump to:

  • Nontuberculous Mycobacterial Lung Disease
  • Bronchiectasis
  • Hidradenitis Suppurativa
  • Pulmonary Hypertension associated with Interstitial Lung Disease
  • Pulmonary Arterial Hypertension
  • Duchenne Muscular Dystrophy
  • Serious and Rare Diseases
  •  

Nontuberculous Mycobacterial Lung Disease

American Lung Association

Learn More

European Lung Foundation

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Bronchiectasis

American Lung Association

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European Lung Foundation

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Hidradenitis Suppurativa

HS Connect

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Pulmonary Hypertension associated with Interstitial Lung Disease

American Lung Association

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European Lung Foundation

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Pulmonary Hypertension Association

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Pulmonary Arterial Hypertension

American Lung Association

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European Lung Foundation

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Pulmonary Hypertension Association

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Duchenne Muscular Dystrophy

CureDuchenne

Learn More

Learn More

Little Hercules Foundation

Learn More

Learn More

Learn More

Team Joseph

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Serious and Rare Diseases

EveryLife Foundation

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National Organization for Rare Disorders

Learn More

Patient advocacy

At Insmed, we believe that all patients have a right to participate in their health journeys, including playing a role in the development of new therapies. Through early, ongoing, and transparent collaboration with patient advocacy organizations and professional medical associations, our Patient Advocacy team seeks to integrate the patient voice throughout the clinical development process, reconciling what matters most to both patients and providers.

To learn more about our advocacy efforts
and get in touch with our team, contact
advocacy@insmed.com.

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